It is a weird day. Back in March after Nevin had the fun of going to the hospital and having a camera stuck thru his nose and had to say certain words and sentences we got the much anticipated phone call from the cleft team nurse that he was a candidate for surgery. Hurray! I was literally jumping all over the house and ready to scream for joy at the top of my lungs. It was an amazing moment. we scheduled our entire Summer around June 6, our surgery date. Then we were told to take him to have an MRI done to check out his carotid artery because another fun thing about 22q is that is screws up your anatomy in so many ways included the carotid artery. Yay! We scheduled it for 2 weeks before our post op appointment with our surgeon, plenty of time for her to review it. Well, two weeks ago we met with our surgeon and our world fell to pieces. First off, she did not do her homework on Nevin because she had no idea what she was talking about when it pertained to him personally. It was a very confusing and frustrating appointment that eventually ended in me saying,
"Well, what kind of surgery are you going to do on the 6th then?"
"What surgery? There's no surgery, who scheduled surgery?"
For real. That happened. Not joking.
But! I refuse to live in that moment.
When the nurse came back we railed on her for awhile about everything and finally left with the promise from her that she would get us in to see the other plastic surgeon on the team. Sure. Whatever. It didn't sound hopeful. I started making arrangements to get into another hospital all together when she called and told us to come back the following week to meet with the other surgeon.
We walked into that meeting not very hopeful but were blown away by Dr. Linn and his knowledge and confidence. I really liked him. Nevin liked him. That gets another vote of approval for me. That kid can size up a doctor in 2.5 seconds flat. He never did like the other surgeon and I should listen to him more. Thankfully surgery is a possibility and is a go! We don't have a date yet but its a go.
Which brings me back to today. Today is June 6, the day we thought Nevin's speech would be changed for the better for forever and instead its been a normal Thursday. I am not gonna lie, it sucks. I wish surgery would have been today but its not. I know there is a plan and I have faith that everything will work out better this way. But I am a little sad today.
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