Lack of blogging is brought to you by overly busy momma! We have had so many things going on this month and I'm trying to keep my head above water. I will give a run down on what's happened this month...
Some of the most exciting news came for Nevin and I already shared it. He is having cleft palette surgery in June! His soft palette is not formed correctly and after much speech therapy, ENT testing and discussion it has been determined that he is a good candidate for surgery to lengthen his palette and help him to get better closer when he speaks. This should close off the air movement from all going through his nose and help his speech to not sound all nasal. We are super excited!
Nevin also had an echo of his heart and ultrasound of his kidneys which came back normal. Kids with 22q deletion tend to have issues with both of those and we are relieved that his were normal!
We visited Nevin's new kindergarten and had his testing done. He is kindergarten ready! The last month he has grown and matured an incredible amount and I am feeling more and more confident with him starting the new school come fall.
Gavyn started seeing Nevin's endocrinologist this month and we are in the processes of checking his growth hormone levels. Hopefully insurance will approve our request quickly and we can get started! I am not looking forward to giving my baby a shot every day but I am excited for him to begin to grow again and hopefully have stronger muscles.
Gav also began PT at PSKids with our great therapists Kelly who has worked with Nevin for 3 years now. He loves going and works really hard. He goes while Nevin gets OT and its hilarious to hear them playing and yelling at each other during their time.
Both boys had their eyes checked and Nevin got "new" glasses. They look the exact same but new prescription, we don't like change much. ;) Gav will most likely have eye surgery to correct the crossing that happened back in October after his shunt surgery. Dr. Cruz will see him and check his eyes in June and we will go from there.
And the biggest news this month is that Ryan got a new full time job! He has been freelancing for 4 years and obviously this will be a huge change for our family! We are super excited. He will be in the media communication department at First E Free Church in West County. We will need to attend church there which will be another big change. We have attended our home church for almost 8 years and my parents attend as well. It is sad to leave but we are ready for our new mission.
And that's what's happened in the last 3 weeks!
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