Gavyn's birthday is February 19th and every year I run a gamut of emotions. It goes like this....
Gavyn's birthday is approaching - I get so excited! My fighter has made it another year!
It gets closer - aw, I am so sentimental about everything we have been through.
It comes and it is a huge celebration!
The next week I get melancholy. I remember how in that first week after his birth it was the only week of his life he lived without hydrocephalus.
By week two I get down right sad. Because on March 5th he had a seizure and we realized he was very, very sick.
But guess what happened this year?! Did I run the gamut of emotions? You betchya. But, I got a little derailed because on February 23rd we ended up in the ER with Mr. Gavyn and a broken shunt. That's right. I didn't have enough feels during that time of year now I get to remember the year he turned four and had his third brain surgery. Geez. I am actually not complaining. I thank God every day for his successful shunt that he has had for four years! I mean, I know of kids not much older than him who have had 30+ brain surgeries because of shunt failures. You know where to count your blessings with hydrocephalus.
Back to my excuses... that was my first side road we had to go on for a bit.
Then March 19th Nevin had an MRI of his heart to get a better peek at his vascular ring. Well, what do you know? Our cardiologist came and got me directly after his MRI to have a little sit down. Mostly I remember the word "surgery" being repeated a lot during that impromptu meeting. I walked out of that one just thinking, "crap pants! We just had brain surgery!" We seriously met with our awesome heart surgeon Dr. Huddleston the following week and scheduled heart surgery for April 4th. So... yeah... do the math. Two "minor" (as far as the surgeons were concerned) surgeries in a very short amount of time.
Again... I am not complaining. Kids with 22q who have heart problems usually have much more severe issues. I am extremely grateful to have a "minor" surgery and not have to go back for more.
Those are my excuses for not blogging though. I want to try and pick it up again but who knows... These two keep me busy!!
