22q

Nevin is seven and was diagnosed with 22q deletion syndrome when he was five years old. This genetic diagnosis presents itself differently in different kids/adults and has a very vast array of complications attached to it. Some kiddos are born with severe heart problems and 22q is diagnosed early. Other kiddos have severe speech issues (our Nevin) and don't get diagnosed until later. Sometimes after a parents child is diagnosed they themselves find out they have 22q. It's a tricky little devil! Recently the show Grey's Anatomy mentioned 22q in passing and got the facts wrong! It's the second time they have done this. We are trying to use this as a moment to get more publicity out. We need to raise awerness for all the families searching for answers. My page is already linked up to 22q where you can read more. Would you mind taking a minute to sign our petition? 

https://www.change.org/p/abc-state-the-accurate-facts-about-22q11-2-deletion-syndrome